Frequently Asked Questions:

The following is a list of some of the most common questions and concerns regarding Lupus, such as what is lupus, the causes, symptoms and managing the disease.

What is lupus?

Known as "the disease with 1000 faces", Lupus is a chronic disease with a variety of symptoms caused by inflammation in one or more parts of the body. It is a complex and baffling condition that can target any tissue including the skin, muscles, joints and major organs such as the heart, kidneys, lungs and brain. It is estimated that more than 50,000 Canadians suffer from lupus. The most common type of lupus is SLE (systemic lupus erythematosus). There are other types of lupus known as Discoid which mainly affects the skin and is triggered by sun exposure. A few individuals develop what's known as drug-induced lupus as a response to some medications. These symptoms disappear when the person stops taking the medication. Lupus often goes in cycles in which symptoms can be active (known as a "flare") and then disappear (known as a "remission"). Diagnosis and treatment are improving, allowing patients to live active and productive lives.

What causes lupus?

No one knows for sure. The specific cause remains unknown. What is known is that the immune system is unable to tell the difference between intruders and the body's own tissues which causes the inflammation and various other related symptoms. Eight times more women than men get lupus. From this, it seems evident that there is a link between the disease and hormones, but how this works remains uncertain. Lupus is not contagious but it appears that inherited factors might play a role in developing the disease, but this is not clear yet.

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What are some of the symptoms?

Each persons experience will be very different. That's why it is called "the disease with 1000 faces". Because it can target any of the body's tissues and organs, it can be hard to diagnose.

The following is a list of the most common symptoms:

• Joint pain and flu-like symptoms
• A red rash across the upper cheeks and bridge of the nose (known as the
  butterfly rash and/or "the bite of the wolf" (referring to the sites design)
• Extreme fatigue
• Unusual reaction to sunlight which causes rashing and swelling of the skin
• Changes in the colour and feeling in the fingers and toes in the cold
• Persistent headache
• Seizures or severe psychological symptoms
  
  

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How do I manage the disease after diagnosis?

A person with lupus needs to avoid situations that can bring on a flare such as intense stress, poor diet, sun exposure, lack of activity and not getting enough rest. It is always important to also take prescribed medications as per your doctor and communicate to them any suspected side effects and or unusual or increased symptoms. A good relationship with your doctor well as the support of family and friends is crucial to the success of managing this disease. Researching the disease, contacting a local organization and attending a support group enables a more educated patient which is equally important. To find out more on receiving a patient advocacy kit, contact Lupus Canada at www.lupuscanada.org

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